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These six F-words won’t fill up your swear jar: What do the F-words mean to youth with impairments? (Video)

Young people discuss what the "F-words" in disability mean to them, while celebrating all they CAN do!

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CP & the Brain (Video)

Darcy Fehlings explains how CP can effect the brain depending on the type and location of the brain injury.

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Patterns and Predictors of Recreational and Leisure Participation for Children with Physical Disabilities

For children and youth, involvement in life situations includes participation in recreational and leisure activities as well as school and work activities.

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Current State of Stem Cell Treatments for Cerebral Palsy: A Guide for Patients, Families, and Service Providers

This resource describes stem cells in the context of cerebral palsy, and describes the current state of stem cell treatments, including an update on clinical trials and stem cell tourism. 

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Family-Centred Service in Ontario: A "Best Practice" Approach for Children with Disabilities and Their Families

Family-centred service is a philosophy and method of service delivery that: recognizes parents as the experts on their child’s needs; promotes partnerships between parents and service providers, and supports the family’s role in decision making about services for their child.

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Biggest Misconception: CP Is All The Same (Video)

Darcy Fehlings addresses the biggest CP myth of all in this video produced by the Cerebral Palsy Foundation.

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An Update on Constraint Therapy in Children with Hemiplegia

Constraint therapy aims to improve the hand and arm use of children with hemiplegia. It involves physical constraint of the uninvolved or less affected arm to increase the use of the more involved or affected arm.

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Genetic Factors in Cerebral Palsy

Recent headlines about the role of genetics in cerebral palsy may have you wondering how studies in genomics might affect your day-to-day life, clinical practice or research. Topics covered by the webinar include an overview of the human genome, how it can vary from person to person, what this has to do with CP & where this might lead.

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Pain Prevention and Treatment in Children and Young People with Cerebral Palsy

Pain in children and young people with cerebral palsy is under-recognized and can have a serious impact on quality of life. The webinar is appropriate for anyone who wants to learn more about pain in children and young people with cerebral palsy.

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Aquatic Exercise Programs for Children and Adolescents with Cerebral Palsy

Aquatic exercise programs can provide a fun and motivating form of physical activity.

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Evaluation of the Opening Doors Project

The aim of this project is to assist the young adults and their families to develop natural support circles and become involved in community activities.

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Serial Casting in the Upper Extremity of Children with Cerebral Palsy

Serial casting is an intervention practice that is becoming more commonly used in occupational therapy (OT) practice, in addition to other treatment modalities/protocols for children with cerebral palsy to manage spasticity and related contractures.

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CP-NET Today! Newsletter

The CP-NET Today! newsletter will help you keep up-to-date on exciting research developments in the area of Cerebral Palsy (CP) research funded by the Ontario Brain Institute (OBI), as well as news and events of interest to the CP-NET community.

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What is Cerebral Palsy? (Video)

Peter Rosenbaum explains the basics of CP in a video produced by the Cerebral Palsy Foundation.

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Finding Community: Social Media for Families of Children with Disabilities

Disability is a culture of identity to which parents aren’t given a handbook, and families of children with disabilities often experience significant stress and feelings of isolation. Social media can be an excellent tool for connecting with other families to share lived experience, support, resources and mentorship, while the accessibility of social media can bridge the barriers of geographic distance and rare diagnoses.

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Participation 101: Tip Sheets

These Tip Sheets apply to children and youth of all abilities and were designed with input from parents, occupational therapists and representatives from community organizations to cover a variety of participation topics.

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Genomic Copy Number Variation in Cerebral Palsy

Scientists have identified many genes involved in neurodevelopmental and neuromuscular disorders, such as autism and muscular dystrophy. This study’s goal was to investigate whether changes in genes could also have effects that result in cerebral palsy (CP).

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Are Services Meeting the Health Needs of Children with Cerebral Palsy?

Cerebral palsy (CP), one of the most common physical disabilities in childhood, is often associated with co-occurring health conditions, which often have a great impact on children and families. As a result, children with CP require a wide variety of health services.

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Parent reporting of the GMFCS: How does it compare to classifications made by clinicians?

The Gross Motor Function Classification System (GMFCS) is a widely used method for classifying the movement ability of children with cerebral palsy.

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Gross Motor Ability Estimator (GMAE-2) Scoring Software for the GMFM

The GMAE-2 is a software package for scoring the Gross Motor Function Measure (GMFM). Like the original, it provides an interval-level measure of gross motor function based on a child's score on the items of the GMFM.

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The Participation and Environment Measure for Children and Youth (PEM-CY): An innovative measure for home, school and community

The Participation and Environment Measure for Children and Youth, or the PEM-CY, is a new measurement tool designed to help parents, service providers and researchers better understand the participation of children and youth.

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Transition to an Adult Doctor: 5 Tips for Success

Based on sage advice from interviewed youths

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Self-Care and Ease of Caregiving - Move & Play

This report highlights the information we gathered in the Move & Play study about children’s participation in self-care activities (such as eating, dressing, and bathing), and ease of caregiving for parents.

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What is the evidence of the effectiveness of strengthening for children with cerebral palsy aged 4-18 years?

Muscle weakness is commonly seen in children with cerebral palsy (CP) and can impact on their activities and participation in daily life situations.

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Determinants of Life Quality in Children with Cerebral Palsy

This two-year study described quality of life and level of participation of children with cerebral palsy (CP).

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The Impact of Environmental Setting on the Mobility of Children with Cerebral Palsy: Research Findings and Clinical Implications

Gross motor function of children with CP is highly variable. Children who are able to walk vary in their speed, endurance, and need for assistive devices.

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Clinical Research: How Does It Work?

CanChild, in partnership with NeuroDevNet, is pleased to offer a one-hour webinar that aims to provide attendees with the essential understanding required to read a study with a critical eye.

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Knowledge Broker

The purpose of this study is to evaluate the effectiveness of physical therapists, acting as Knowledge Brokers (KBs) within their own clinical facility to facilitate the clinical use of evidence-based measures of gross motor function for children with cerebral palsy.

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Move & Play Executive Summary

The purpose of the Move & PLAY study was to gain a better understanding of the child, family, and service delivery factors that support the development of movement abilities and participation in self-care, recreation, and play of preschool children with cerebral palsy (CP).

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What helps adolescents with cerebral palsy to be physically active? Developing a program to support youth based on focus groups.

In this communication we want to share our study protocol as part of a program to support physical activity for youth with cerebral palsy (CP) using a focus group methodology.

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I Want to Participate In...

The “I Want to Participate In…” series of Tip Sheets provide examples of a wide range of leisure activities and are designed for use by children and young adults.

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Communication Technology for Children with Cerebral Palsy

CP-NET is proud to present "Communication Technology for Children with Cerebral Palsy", a webinar highlighting new research and technologies that aim to assess and support a child's ability to communicate.

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Should the Gross Motor Function Classification System Be Used Outside of Cerebral Palsy?

The Gross Motor Function Classification System (GMFCS) is a classification tool used to describe levels of gross motor functioning of children with cerebral palsy (CP). Because of the tool’s accuracy in classifying children with CP, some researchers have attempted to use the GMFCS to describe functional mobility of people with other conditions. Here we explain why the GMFCS should not be used outside the domain of CP.

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Gross Motor Function Classification System - Expanded & Revised (GMFCS - E&R)

The Gross Motor Function Classification System - Expanded & revised (GMFCS - E&R) is a 5 level classification system that describes the gross motor function of children and youth with cerebral palsy.

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Family Life - Move & Play Study

This report focuses on what parents told us about their families at the 2nd session (a telephone interview). We asked about many different things, for example: family activities, the supports that families have in caring for their children, and the home environment.

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"If I knew then what I know now": Parents' reflections on raising a child with cerebral palsy.

In Brief - By talking with parents of children with CP and exploring this feeling further, the aim was to identify areas in which professionals can improve on their practice, as well as to collect information to help parents of newly-diagnosed children with CP.

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Creating the Future: Engaging Children with Cerebral Palsy in the Circle of Care (Video)

A video inspired by the parent members of the On Track study team and funded by PCORI.

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Summary of the CP-NET Clinical Constraint Therapy Study

Summary prepared for participants in a 2012 CP-NET Clinical Constraint Therapy study.

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Participation and Environment Measure for Children and Youth (PEM-CY)

The Participation and Environment Measure for Children and Youth, or the PEM-CY, is a new measurement tool designed to help parents, service providers and researchers better understand the participation of children and youth, ages 5 to 17.

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Research summary: Changing the task or changing the environment = Changing the Child

This summary is written to help families of children with Cerebral Palsy to understand the findings of a research study “Focus on function: a cluster, randomized controlled trial comparing child-versus contextfocused intervention for young children with cerebral palsy”.

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Ontario Motor Growth Study

The Ontario Motor Growth Study was a longitudinal study designed to chart the gross motor progress of a randomly selected sample of over 650 Ontario children with cerebral palsy.

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How Parents View Their Child’s Participation and Environment: Creating a Foundation for the PEM-CY

This current In Brief includes more details about what we learned from parents about their child’s participation and the impact of the environment on participation.

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Complementary and Alternative Therapies (CAMs): What are the Issues and Why are they so Heated?

Complementary and alternative medicine (CAM) is the term for medical products and practices that are not part of standard care. This webinar was presented by Dr Peter Rosenbaum on behalf of CP-NET.

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Cerebral Palsy and Mental Health

Mental and physical health are deeply interconnected.  While chronic health conditions such as Cerebral Palsy (CP) can increase the risk of developing anxiety or depression, untreated anxiety or depression can also contribute to poor physical health. 

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Parent Needs and Strategies for Promoting Child Participation: What We Learned from Developing the Participation and Environment Measure for Children and Youth (PEM-CY)

This In Brief focuses on feedback from parents regarding the Participation and Environment Measure for Children and Youth (PEM-CY).

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How to recognize and refer children with hemiplegic (unilateral) cerebral palsy

‘Hemiplegia’, ‘hemiparesis’, or ‘unilateral’ CP affects the movement and muscle tone on one side of the body, although often the other side of the body may be affected to a lesser extent.2 It is the most common form of CP.

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Monitoring development of children with cerebral palsy: the On Track study. Protocol of a longitudinal study of development and services.

Monitoring development of children with cerebral palsy: the On Track study. Protocol of a longitudinal study of development and services.

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Sleep Issues Among Children with Cerebral Palsy

Sleep issues are very common throughout infancy, childhood, and pre-adolescence. Studies estimate that sleep disturbances vary from 5% to 40% among all children.

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The transition to adulthood for youth with physical disabilities: A qualitative exploration

This qualitative research project examined the experiences, perceptions and needs of youth with physical disabilities in the process of transition from adolescence to adulthood.

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Meet Jessica (Video)

In this video, Jessica (a community advisor on cerebral palsy research and person with lived experience) and Jan Willem (a clinician researcher studying cerebral palsy) tell us about cerebral palsy, some of the misconceptions that surround it and what we can do to tackle them. Produced by the Ontario Brain Institute for Brain Awareness Week 2017.

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What do we know about the relationship between family characteristics and infant gross motor development? Research findings and clinical implications

In this Keeping Current, we explore the relationship between selected family characteristics and infant gross motor development.

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"If I knew then what I know now" ... Parents' Reflections on Raising Children with Cerebral Palsy

Qualitative interviews with 9 parents participating in this study in order to learn from them about their experiences parenting a child with cerebral palsy from early childhood into young adulthood.

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Gross Motor Function Measure (GMFM)

The Gross Motor Function Measure (GMFM) is a clinical tool designed to evaluate change in gross motor function in children with cerebral palsy.

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Creating Possibilities for Cerebral Palsy (Video)

Created in collaboration with children, youth and adults with cerebral palsy and their families, and released in celebration of World CP Day.

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Child and youth participation in leisure activities: Does the environment make a difference?

In this Keeping Current, we explore the impact of the environment on the participation of children and youth who are living with a disability.

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Motor Growth Curves

GMFM scores of a sample of over 650 Ontario children with cerebral palsy with varying GMFCS levels have been used to create five Motor Growth Curves.

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Use of the Gross Motor Function Classification System to Optimize Rehabilitation Management of Children with Cerebral Palsy

The GMFCS is a standardized system to classify gross motor function of children with CP aged 12 months to 12 years based on observation of a child's self-initiated movement and need for assistive technology and/or wheeled mobility.

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Adolescents with cerebral palsy: Transition to high school

The literature helps in understanding the things that affect children with CP in moving from preschool to primary school and from school to post-secondary options.

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Mild Traumatic Brain Injury (Concussion) Education

In collaboration with the College of Family physicians and the Provincial MTBI Strategy, the team will work to develop and evaluate user-friendly materials that help physicians in: identification of MTBI; recommendations for return to activity and school; referral guidelines for further services, specifically for children/youth in their practice.

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Quality FM

The Quality FM is an observational instrument to be used in the evaluation of the quality of movement in children with cerebral palsy.

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Metformin and Neural Repair in Mouse Models of Cerebral Palsy

Metformin is an promising drug that may be effective in the treatment of people with CP following brain injury.

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Bringing the 'F-Words' to Life: How are families and service providers using the 'F-words' in practice?

A CP-NET webinar highlighting 'F-word' in Childhood Disability resources and strategies for implementing the concept at home and in clinical practice.

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Family-centred service: Moving ideas into practice

This study is designed to develop and evaluate educational materials about family-centred service.

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Caring About Caregivers

Through this research, we are investigating how various child and caregiver characteristics impact the health of primary, informal (unpaid) caregivers (usually parents).

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Lower extremity splinting for children with cerebral palsy

The purpose of this multi-centre randomized control trial was to evaluate the effects of lower-extremity orthoses on the gross motor function and performance of children with spastic CP who are not yet walking independently.

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My Favourite Words

Based on "The 'F-words' in Childhood Disability: I swear this is how we should think!" (© CanChild 2012) Created by Instituto Nossa Casa (Brazil) . English version produced by CP-NET with support from the Ontario Brain Institute.

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Family-centred service: Developing and validating a self-assessment tool for pediatric service providers

This study was designed to develop a self-assessment tool for pediatric health professionals, to measure their self-reported implementation of family-centred.

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An Update On The Use Of Virtual Reality Technology To Improve Movement In Children With Physical Impairments

The use of virtual reality technology as a rehabilitation intervention to improve or remediate children's movement skills is being explored in clinical practice and research.

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Determining Physical Activity Levels and Cardiovascular Health in Adults with Cerebral Palsy (Stay-FIT 20-40 years study)

In the Stay-FIT pilot study, it was determined that the physical activity level of adolescents with CP (mean age 13.5 years) was lower than that of their healthy peers. However, the vessel health was not statistically different.

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How Does Clinical Research Work? A Two-part Primer. Part 1: How to Ask a Research Question and Design a Study

Clinical and health services research in childhood disability are essential if we are to move the field forward and have confidence that what we believe we ‘know’ is in fact based on credible studies.

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Enhancing Fitness, Adaptive Motor Function, and Participation of Children with Cerebral Palsy Classified in Levels IV and V

This report will address adaptive motor function of children with cerebral palsy. Adaptive motor function enables performance of activities in daily life despite limitations in motor control of posture and movement.

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Selective Dorsal Rhizotomy (SDR) Webinar

This CP-NET webinar allows you to meet the experts on Selective Dorsal Rhizotomy (SDR), highlighting frequently asked questions and practical information. All information is presented in plain language by a panel that includes parent, doctor, therapist, and researcher perspectives.

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Constraint-Induced Movement Therapy for children with cerebral palsy: Is there an impact on brain activity?

This In Brief discusses Constraint Induced Movement Therapy (CIMT), a therapy approach program aimed to improved the hand and arm use of children with hemiplegia.

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Discover CP-NET (Video)

Learn more about CP-NET, our vision, our programs of research, and the amazing partners that help make it all happen

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Growing up with CP: Mental health & well-being

CP-NET is excited to present “Growing up with CP: Mental Health & Well-being,” a webinar initiated and led by young adults for young adults. Highlighting both lived experience and recent research from the CP-NET MyStory project, this webinar will explore the intersection of mental health and CP, and discuss how we can better support young people in developing positive outcomes in mental health and well-being.

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Conceptual Model of the Move and PLAY study

A conceptual model is a diagram that shows different factors that we think may have an effect on a variety of outcomes, such as motor abilities, self-care abilities, and participation in play.

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Designing Action-based Exergames for Children with Cerebral Palsy

Exergames are a promising way to allow children with CP to participate in physical activity, permitting adaptations of exercise equipment and video games. In this In Brief, researchers tried to answer the question "Can action based exergames that are fun to play over the long term be designed for children with CP?"

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Young Children's Participation and Environment Measure (YCPEM)

The YC-PEM is designed to help parents, service providers and researchers better understand the participation of young children with and without disabilities ages 0 to 5 years.

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How Does Clinical Research Work? A two-part Primer. Part 2: How to Do a Study, and What Should We Measure?

Part 2 focuses on issues in outcome measurement and generalizing findings from one study to the next.

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Hyperbaric Oxygen Therapy (HBOT) as a ‘treatment’ for Cerebral Palsy

Hyperbaric Oxygen Therapy (HBOT) is a technique that allows 100% oxygen to be delivered to the body's tissues under increased atmospheric pressure. To achieve this, the patient enters a "pressure chamber" that makes it possible to increase the atmospheric pressure to "hyperbaric" levels, i.e., above the earth's atmospheric pressure at sea level.

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The F-words of Disability (Video)

Jan Willem Gorter sums up the groundbreaking "F-words" paper in 30 seconds in a video produced by the Cerebral Palsy Foundation.

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Letting go (at least a little bit)

Jan Willem Gorter discusses teens in transition in this video produced by the Cerebral Palsy Foundation. What do you do to encourage your child's independence?

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Gross Motor Function Measure (GMFM) New, Shortened Versions - Move & Play

The Move & PLAY team developed a new, even shorter method of using the GMFM: the GMFM-66 B&C. It uses a “basal and ceiling” approach; child is assessed using items that range between the easiest and most difficult levels of his or her abilities; accurate scores can be obtained using as few as 15 items

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