This project will involve taking a participatory action research approach to developing a model for the transition to adulthood for youth with disabilities. This model will be based on capacity-building and community assets and resources.
The Motor Learning Strategy Rating Instrument (MLSRI) is an observer-rated instrument that measures the extent to which physiotherapists use motor learning strategies during physiotherapy interventions for children with acquired brain injury (ABI).
This Keeping Current is one of a series of reports that discuss the effectiveness of rehabilitation interventions for children and youth with brain injury.
These six F-words won’t fill up your swear jar: What do the F-words mean to youth with impairments? (Video)
Young people discuss what the "F-words" in disability mean to them, while celebrating all they CAN do!
The Child and Adolescent Factors Inventory (CAFI) is an inventory of problems in physical, cognitive and psychosocial functioning and other symptoms encountered by children with acquired brain injuries as well as other childhood disabilities.
Darcy Fehlings explains how CP can effect the brain depending on the type and location of the brain injury.
In health care, there has been increasing recognition of the need to facilitate the transfer of research evidence into clinical practice and policy development.
Complementary and alternative medicine (CAM) is the term for medical products and practices that are not part of standard care. This webinar was presented by Dr Peter Rosenbaum on behalf of CP-NET.
Patterns and Predictors of Recreational and Leisure Participation for Children with Physical Disabilities
For children and youth, involvement in life situations includes participation in recreational and leisure activities as well as school and work activities.
The KIT: Keeping it Together™ has been designed to help these parents use information as a tool that will help them to get 'the best' for their child(ren).
A studies series on the topic of Children with disabilities in Ontario: A profile of children's services.
The Measure of Processes of Care (pronounced "em-pock") is a well-validated and reliable self-report measure of parents' perceptions of the extent to which the health services they and their child(ren) receive are family-centred.
Children with Childhood Apraxia of Speech (CAS) present with severe speech difficulties. The underlying deficits of CAS are not completely understood and may be impacting the children’s success with reading and writing activities.
Current State of Stem Cell Treatments for Cerebral Palsy: A Guide for Patients, Families, and Service Providers
This resource describes stem cells in the context of cerebral palsy, and describes the current state of stem cell treatments, including an update on clinical trials and stem cell tourism.
Parent Needs and Strategies for Promoting Child Participation: What We Learned from Developing the Participation and Environment Measure for Children and Youth (PEM-CY)
This In Brief focuses on feedback from parents regarding the Participation and Environment Measure for Children and Youth (PEM-CY).
This cross-sectional survey has been conducted as a follow-up to a study of family-centred service implementation in Ontario during the early 1990's.
The purpose of the Working Together for Change Project was to influence the thinking and behaviour of researchers, educators and students in post secondary educational settings.
Family-Centred Service in Ontario: A "Best Practice" Approach for Children with Disabilities and Their Families
Family-centred service is a philosophy and method of service delivery that: recognizes parents as the experts on their child’s needs; promotes partnerships between parents and service providers, and supports the family’s role in decision making about services for their child.
‘Hemiplegia’, ‘hemiparesis’, or ‘unilateral’ CP affects the movement and muscle tone on one side of the body, although often the other side of the body may be affected to a lesser extent.2 It is the most common form of CP.
Handwriting is a complex and important functional task for school-aged children and the primary way they express thoughts, ideas and knowledge.
PEGS is a measure that uses children's self-reported performance on everyday tasks to establish and prioritize occupational therapy interventions.
Sleep issues are very common throughout infancy, childhood, and pre-adolescence. Studies estimate that sleep disturbances vary from 5% to 40% among all children.
Dynamic Systems Theory: A Framework for Exploring Readiness to Change in Children with Cerebral Palsy
Dynamic Systems Theory (DST) is a theory of motor development that can be applied to the management of children with Cerebral Palsy.
An online evidence-based DCD module could thus support PTs to implement best DCD practice.
Darcy Fehlings addresses the biggest CP myth of all in this video produced by the Cerebral Palsy Foundation.
Establishing the cardiovascular risk trajectory of children with Developmental Coordination Disorder (PHAST II)
Timely and effective identification of children with DCD relies on a better understanding of teachers' perceptions of children with motor difficulties, especially with regard to the influence of child gender, child behaviour and the type of motor problem.
This qualitative research project examined the experiences, perceptions and needs of youth with physical disabilities in the process of transition from adolescence to adulthood.
Partnering for Change (P4C) is a new way for occupational therapists to provide school-based services to children with DCD.
In the PEGS study we are examining whether young children with a disability (6-9 years) can validly self-report their performance on everyday tasks, and whether these self-reports can be used to establish and prioritize goals for occupational therapy intervention.
Although it has been suggested that adolescents with cerebral palsy (CP) may experience loss of function following puberty, little research evidence exists to support this claim.
Constraint therapy aims to improve the hand and arm use of children with hemiplegia. It involves physical constraint of the uninvolved or less affected arm to increase the use of the more involved or affected arm.
Recent headlines about the role of genetics in cerebral palsy may have you wondering how studies in genomics might affect your day-to-day life, clinical practice or research. Topics covered by the webinar include an overview of the human genome, how it can vary from person to person, what this has to do with CP & where this might lead.
The Partnering for Change team used evidence from the literature to design a conceptual model that was tested in school settings and refined.
Casts, Splints, and Orthoses - Upper Extremity Review of effectiveness literature for children with neurological disorders
Children who have a neurological condition, such as cerebral palsy or brain injury, often have difficulty moving their body. Muscle spasticity is one of the most common reasons for this difficulty.
The PARTICIPATE study has been designed to examine the participation of children with physical disabilities in formal and informal everyday activities.
This project was initiated and funded by the Ministry for Child and Youth Services (MCYS) in Ontario. The results of our synthesis have been used for the ministry’s development of a Youth Policy Framework, named stepping stones.
Hospital-based Comprehensive Care Programs for Children with Special Health Care Needs (CSHCN): A Systematic Review
Comprehensive hospital-based programs for CSHCN aim to: streamline care, improve health outcomes, and support families and primary care providers.
The International Classification of Functioning, Disability, and Health (ICF): A Global Model to Guide Clinical Thinking and Practice in Childhood Disability
The International Classification of Functioning, Disability and Health (ICF) (WHO, 2001) is a classification system developed by the World Health Organization that focuses on the 'components of health'.
Pain in children and young people with cerebral palsy is under-recognized and can have a serious impact on quality of life. The webinar is appropriate for anyone who wants to learn more about pain in children and young people with cerebral palsy.
In this video, Jessica (a community advisor on cerebral palsy research and person with lived experience) and Jan Willem (a clinician researcher studying cerebral palsy) tell us about cerebral palsy, some of the misconceptions that surround it and what we can do to tackle them. Produced by the Ontario Brain Institute for Brain Awareness Week 2017.
Aquatic exercise programs can provide a fun and motivating form of physical activity.
An informational transition guide for teens with Cerebral Palsy (CP) in starting high-school.
The CanChild team decided to strategic plan for their knowledge translation activities using a framework proposed by Holmes
Qualitative interviews with 9 parents participating in this study in order to learn from them about their experiences parenting a child with cerebral palsy from early childhood into young adulthood.
This document summarizes the discussions had from a teleconference and outlines ways to support knowledge brokering in your organization.
The aim of this project is to assist the young adults and their families to develop natural support circles and become involved in community activities.
What are the criteria that distinguish children with a MTBI from those with moderate and severe injuries?
The Gross Motor Function Measure (GMFM) is a clinical tool designed to evaluate change in gross motor function in children with cerebral palsy.
Enhancing Fitness, Adaptive Motor Function, and Participation of Children with Cerebral Palsy Classified in Levels IV and V
This report will address adaptive motor function of children with cerebral palsy. Adaptive motor function enables performance of activities in daily life despite limitations in motor control of posture and movement.
Early identification, assessment and intervention need to happen during the preschool years to help children with DCD develop pre-academic skills, facilitate transition into school and prevent the development of secondary problems.
Concussion/Mild Traumatic Brain Injury has been receiving warranted attention over the past 2 years, after years of the impact of concussion being minimized.
Decision-making about Assistive Technology Interventions in Children with Disabilities: Considerations for Service Providers Working with Families
Assistive technologies include devices that are really tools, equipment, or services designed to compensate for, or enhance the function of, some physical, cognitive or environmental limitation(s).
Serial casting is an intervention practice that is becoming more commonly used in occupational therapy (OT) practice, in addition to other treatment modalities/protocols for children with cerebral palsy to manage spasticity and related contractures.
The purpose of this pilot study was to evaluate a family-centred functional therapy approach to improving motor function in 18-month to 4-year old children with cerebral palsy.
Sensory integration remains a significant area of practice for occupational therapists and research into sensory integrative and sensory processing disorders continues to flourish, so it is important to keep abreast of recent findings.
Development and Testing of a Resource Manual for Parents of Young Adults Who Receive Individualized Funding for Support
The goal of this project is to develop a Resource Manual that can be broadly circulated to families who receive individualized funding.
Children can be bullied in several ways. For example, a child who is physically bullied may be kicked, hit, or pushed by a peer who is older or stronger while a child who is verbally bullied may be called mean names, insulted, or threatened.
Although the impact of the disorder in the early school years has been described in the research literature, less is known about the impact of DCD in the later years.
This study investigated the use of an educational outreach program (using a 'shared-care' model) made available to 147 primary care physicians to improve the long-term management of children with DCD.
Working Together for Change: The Role of Families in Generating, Using and Transmitting Knowledge in Higher Education and Research
Children, youth and young adults with disabilities and their families currently play a crucial role in changing the attitudes and expectations of their neighbours, those in the helping professions and public policy makers.
The objectives of this research are to develop written guidelines to help pediatric therapists use standardized tests more effectively, and then to evaluate the effectiveness of these guidelines.
This study was designed to examine the reliability, validity and responsiveness of the Gross Motor Function Measure (GMFM) to describe and evaluate changes in motor function in children with Down Syndrome.
The Gross Motor Function Classification System - Expanded & revised (GMFCS - E&R) is a 5 level classification system that describes the gross motor function of children and youth with cerebral palsy.
The CP-NET Today! newsletter will help you keep up-to-date on exciting research developments in the area of Cerebral Palsy (CP) research funded by the Ontario Brain Institute (OBI), as well as news and events of interest to the CP-NET community.
Created in collaboration with children, youth and adults with cerebral palsy and their families, and released in celebration of World CP Day.
This study focused on the impact of an accessible playground on the community and people's attitudes.
Understanding the Values, Priorities, and World Views of Families Raising Children with Chronic Developmental Conditions
This three-year study will look at how parenting a child with a disability affects family values, priorities, and views of their place in the world.
This report focuses on what parents told us about their families at the 2nd session (a telephone interview). We asked about many different things, for example: family activities, the supports that families have in caring for their children, and the home environment.
Knowledge brokering is the process of “bringing people together, to help them build relationships, uncover needs, and share ideas and evidence that will let them do their jobs better.
Constraint-Induced Movement Therapy for children with cerebral palsy: Is there an impact on brain activity?
This In Brief discusses Constraint Induced Movement Therapy (CIMT), a therapy approach program aimed to improved the hand and arm use of children with hemiplegia.
This project was designed to investigate the validity, reliability and responsiveness of the Gross Motor Performance Measure (GMPM).
What are the factors that influence transitions to home, school and community / recreational activities for the school-aged child with an acquired brain injury (ABI)?
This report focuses on what parents told us about the health conditions their children have, and how these conditions affected their daily lives. When we say “health”, we mean all the different functions of the whole body.
Peter Rosenbaum explains the basics of CP in a video produced by the Cerebral Palsy Foundation.
In this Keeping Current, we explore the impact of the environment on the participation of children and youth who are living with a disability.
In Brief - By talking with parents of children with CP and exploring this feeling further, the aim was to identify areas in which professionals can improve on their practice, as well as to collect information to help parents of newly-diagnosed children with CP.
Consistent with best practice guidelines for transition developed in Ontario, the study seeks ways to improve health service delivery to youth in transition and, in so doing, to address this important contemporary health challenge.
Learn more about CP-NET, our vision, our programs of research, and the amazing partners that help make it all happen
Integrated Knowledge Translation in Childhood Disability: Engaging with Partners Throughout the Research Process
This reflection paper is intended to raise awareness and stimulate thinking about Integrated Knowledge Translation (iKT) and how one might engage with a range of partners to develop iKT strategies.
Families of children with special needs often require a number of services to enhance the health, well-being and life quality of their child and family.
CP-NET is excited to present “Growing up with CP: Mental Health & Well-being,” a webinar initiated and led by young adults for young adults. Highlighting both lived experience and recent research from the CP-NET MyStory project, this webinar will explore the intersection of mental health and CP, and discuss how we can better support young people in developing positive outcomes in mental health and well-being.
A video inspired by the parent members of the On Track study team and funded by PCORI.
GMFM scores of a sample of over 650 Ontario children with cerebral palsy with varying GMFCS levels have been used to create five Motor Growth Curves.
Canadian child development organizations lead research in innovative supports for making practice changes based on evidence
Administrators in the study reported that knowledge brokering appears to be an efficient strategy for providing educational opportunities that enable integration of new ideas into everyday practice.
In this document, the incidence and impact of brain injury in children and youth is presented
Summary prepared for participants in a 2012 CP-NET Clinical Constraint Therapy study.
The Child and Adolescent Scale of Environment (CASE) measures the perceived impact of problems experienced with physical, social and attitudinal environment features of the child’s home, school and community.
Use of the Gross Motor Function Classification System to Optimize Rehabilitation Management of Children with Cerebral Palsy
The GMFCS is a standardized system to classify gross motor function of children with CP aged 12 months to 12 years based on observation of a child's self-initiated movement and need for assistive technology and/or wheeled mobility.
Developmental Trajectories of Youth with Disabilities (age 12-25 years of age): A Knowledge Synthesis
This report is the outcome of a knowledge synthesis project on developmental trajectories of youth with disabilities, ages 12 - 25 years.
Children grow, change and constantly develop throughout their ‘formative’ years. This process of change in size and capacity – this process of ‘becoming’ – is certainly the defining element of what distinguishes children and youth from adults.
Developmental Coordination Disorder: Examination of a feasible screening and intervention for clumsy children (PHAST I)
Concussions are traumatic brain injuries sustained when the head hits an object or a moving object strikes the head or another part of the body.
The Quality of Upper Extremity Skills Test is an outcome measure designed to evaluate movement patterns and hand function in children with cerebral palsy.
A conceptual model is a diagram that shows different factors that we think may have an effect on a variety of outcomes, such as motor abilities, self-care abilities, and participation in play.
The Focus on Function Study will compare two treatment approaches ("child-focused" and "context-focused") that are currently being used for children with cerebral palsy and other developmental and motor delays.
This was a qualitative research study intended to increase the understanding of children with Developmental Coordination Disorder (DCD) by examining the observations and experiences of their parents.
This was the first of two studies conducted to construct a valid and reliable instrument that would measure the processes of professional care-giving.
This cross-sectional study continued a multi-year program of research conducted to understand the relation between caregiving offered to parents of children with neuro-developmental disabilities and parents' mental health
Measuring the External Impact of University-Community Research Alliances and Partnerships Addressing Social/Health Services Issues
The aim of this 3-year research program is to develop a reliable and valid survey measure of the community impacts of research partnerships between universities and community agencies that address social or health services issues.
The literature helps in understanding the things that affect children with CP in moving from preschool to primary school and from school to post-secondary options.
In collaboration with the College of Family physicians and the Provincial MTBI Strategy, the team will work to develop and evaluate user-friendly materials that help physicians in: identification of MTBI; recommendations for return to activity and school; referral guidelines for further services, specifically for children/youth in their practice.
The Quality FM is an observational instrument to be used in the evaluation of the quality of movement in children with cerebral palsy.
The Child and Adolescent Scale of Participation (CASP) measures the extent to which children participate in home, school, and community activities as reported by family caregivers.
This current In Brief includes more details about what we did to evaluate whether the PEM-CY provides consistent information about participation and actually measures what we want it to measure.
The Participation and Environment Measure for Children and Youth, or the PEM-CY, is a new measurement tool designed to help parents, service providers and researchers better understand the participation of children and youth, ages 5 to 17.
The International Classification of Functioning, Disability, and Health (ICF): There is Always More Than a Single Story*
The ICF helps clinicians and families think about a broader and fuller picture of both the specific health information and the life situation of a patient.
Scientists have identified many genes involved in neurodevelopmental and neuromuscular disorders, such as autism and muscular dystrophy. This study’s goal was to investigate whether changes in genes could also have effects that result in cerebral palsy (CP).
A clinical decision-making process outlining how therapists can use motor learning strategies in practice.
This shared care model introduced occupational therapists (OT) into primary care offices to assist with the identification, diagnosis and management of DCD.
This report focuses on what parents told us about the recreation and rehabilitation services their children received. We collected information about various aspects of these services at the 2nd session, using a parent questionnaire developed by the research team.
Exergames are a promising way to allow children with CP to participate in physical activity, permitting adaptations of exercise equipment and video games. In this In Brief, researchers tried to answer the question "Can action based exergames that are fun to play over the long term be designed for children with CP?"
The YC-PEM is designed to help parents, service providers and researchers better understand the participation of young children with and without disabilities ages 0 to 5 years.
Fidelity to treatment or intervention fidelity refers to the degree to which an intervention or program is delivered as intended.
Part 1: Children, families and services, Part 2: Perceptions about family-centred service delivery for children with disabilities and Part 3: Factors affecting family-centred service delivery for children with disabilities.
This qualitative study was designed to examine the perceived effect of parent support groups in providing parents with support, reducing their stress, and improving their ability to deal with disability issues.
This Keeping Current is one of a series of reports that discuss the effectiveness of rehabilitation interventions for children and youth with brain injury.
This program will enable trainees to generate urgently needed evidence on rehabilitation, and ensure that research findings are translated into improved quality of life.
This summary is written to help families of children with Cerebral Palsy to understand the findings of a research study “Focus on function: a cluster, randomized controlled trial comparing child-versus contextfocused intervention for young children with cerebral palsy”.
Pilot study: Perceived competence and goal setting in young children experiencing motor performance difficulties
This was a pilot study designed to develop and evaluate a methodology to assist young children in assessing their competence in the performance of daily tasks and set goals for therapy.
The APS is a brief, psychometrically sound instrument that measures the assistance that a school-aged child with a disability requires to participate in play and leisure activities at home or in the community, from the primary caregiver's perspective.
How Does Clinical Research Work? A two-part Primer. Part 2: How to Do a Study, and What Should We Measure?
Part 2 focuses on issues in outcome measurement and generalizing findings from one study to the next.
This one year pilot study will examine the effectiveness of a short-term, individualized occupational therapy intervention with children 7-15 years of age who are experiencing difficulties at home and school after a traumatic brain injury.
Hyperbaric Oxygen Therapy (HBOT) is a technique that allows 100% oxygen to be delivered to the body's tissues under increased atmospheric pressure. To achieve this, the patient enters a "pressure chamber" that makes it possible to increase the atmospheric pressure to "hyperbaric" levels, i.e., above the earth's atmospheric pressure at sea level.
The term concussion is frequently used to describe head injuries in children but there is a lack of agreement about how this term is defined.
Children with cerebral palsy are at increased risk for language disorders. It is estimated that 20% of children diagnosed with cerebral palsy have severe communication impairments.
Cerebral palsy (CP), one of the most common physical disabilities in childhood, is often associated with co-occurring health conditions, which often have a great impact on children and families. As a result, children with CP require a wide variety of health services.
Trajectories and Consequences: Long-term follow-up of children and youth and their families after acquired brain injury.
This study is designed to develop and evaluate educational materials about family-centred service.
The Ontario Motor Growth Study was a longitudinal study designed to chart the gross motor progress of a randomly selected sample of over 650 Ontario children with cerebral palsy.
The Gross Motor Function Classification System (GMFCS) is a widely used method for classifying the movement ability of children with cerebral palsy.
This Keeping Current provides an overview of the knowledge brokering literature and is intended to help researchers, service providers, managers and policy makers who are considering establishing knowledge brokering activities within their organizations.
Might the development of a software system to accompany the Measure of Processes of Care (MPOC) Outcome Measure enhance the use of this tool in clinical practice?
This current In Brief includes more details about what we learned from parents about their child’s participation and the impact of the environment on participation.
Jan Willem Gorter sums up the groundbreaking "F-words" paper in 30 seconds in a video produced by the Cerebral Palsy Foundation.
These newsletters will keep you updated on the status of the Partnering for Change project, which aims to develop new ways for occupational therapists to provide school-based services to children with DCD.
Through this research, we are investigating how various child and caregiver characteristics impact the health of primary, informal (unpaid) caregivers (usually parents).
Helpful tip sheets written by parents who have children with Cerebral Palsy for parents.
Jan Willem Gorter discusses teens in transition in this video produced by the Cerebral Palsy Foundation. What do you do to encourage your child's independence?
The Participation and Environment Project is a collaboration between researchers in the United States and Canada.
The Move & PLAY team developed a new, even shorter method of using the GMFM: the GMFM-66 B&C. It uses a “basal and ceiling” approach; child is assessed using items that range between the easiest and most difficult levels of his or her abilities; accurate scores can be obtained using as few as 15 items
The purpose of this one-year study is to examine the needs of decision-makers in the field of childhood disability services when it comes to using research-based information to shape policy.
The Children's Assessment of Participation and Enjoyment (CAPE) and the Preferences for Activities of Children (PAC) are two companion measures of children's participation.
The GMAE-2 is a software package for scoring the Gross Motor Function Measure (GMFM). Like the original, it provides an interval-level measure of gross motor function based on a child's score on the items of the GMFM.
This qualitative study involved interviewing 20 adolescents with and without physical disabilities to explore their memories and perceptions of play and work.
The purpose of this multi-centre randomized control trial was to evaluate the effects of lower-extremity orthoses on the gross motor function and performance of children with spastic CP who are not yet walking independently.
The report reviews a considerable volume of the English language literature published since 1990, and provides a useful review of some critical concepts about the epidemiology of childhood disabilities, as well as an overview of the disabilities with which OACRS programs are concerned.
Based on sage advice from interviewed youths
The Participation and Environment Measure for Children and Youth (PEM-CY): An innovative measure for home, school and community
The Participation and Environment Measure for Children and Youth, or the PEM-CY, is a new measurement tool designed to help parents, service providers and researchers better understand the participation of children and youth.
This report highlights the information we gathered in the Move & Play study about children’s participation in self-care activities (such as eating, dressing, and bathing), and ease of caregiving for parents.
What is the evidence of the effectiveness of strengthening for children with cerebral palsy aged 4-18 years?
Muscle weakness is commonly seen in children with cerebral palsy (CP) and can impact on their activities and participation in daily life situations.
Based on "The 'F-words' in Childhood Disability: I swear this is how we should think!" (© CanChild 2012) Created by Instituto Nossa Casa (Brazil) . English version produced by CP-NET with support from the Ontario Brain Institute.
Developing All About Outcomes, Part 1: Measuring clinical outcomes in children's rehabilitation centres in Ontario
This project was the first of two studies designed to develop and test a computerized software program that would enable health service providers in children's treatment centres to select the most appropriate outcome measure to use with individual clients and/or in program evaluations.
The provision of occupational therapy services to students in the school system continues to be a growing area of pediatric practice in Ontario, through the School Health Support Services (SHSS) Programme, and elsewhere across Canada and the United States under varying service delivery and funding models.
Family-centred service: Developing and validating a self-assessment tool for pediatric service providers
This study was designed to develop a self-assessment tool for pediatric health professionals, to measure their self-reported implementation of family-centred.
Early Identification: Are Toddlers with Speech/Language Impairments at Increased Risk for Developmental Coordination Disorder?
Some children with speech/language impairment show delays in their ability to communicate, which are not due to any sensory, intellectual or neurological disorder.
This two-year study described quality of life and level of participation of children with cerebral palsy (CP).
An Update On The Use Of Virtual Reality Technology To Improve Movement In Children With Physical Impairments
The use of virtual reality technology as a rehabilitation intervention to improve or remediate children's movement skills is being explored in clinical practice and research.
The Impact of Environmental Setting on the Mobility of Children with Cerebral Palsy: Research Findings and Clinical Implications
Gross motor function of children with CP is highly variable. Children who are able to walk vary in their speed, endurance, and need for assistive devices.
Alternative And Complementary Therapies: For Children And Youth With Brain Injury - Part 1: Controversies
This Keeping Current is one of a series of reports that discuss the effectiveness of rehabilitation interventions for children and youth with brain injury.
In the STACK Study (which stands for Screening, Tracking and Assessing Coordination in Kids), students in Grades 4 to 8 in two school boards were screened to identify children who may have coordination difficulties.
CanChild, in partnership with NeuroDevNet, is pleased to offer a one-hour webinar that aims to provide attendees with the essential understanding required to read a study with a critical eye.
Determining Physical Activity Levels and Cardiovascular Health in Adults with Cerebral Palsy (Stay-FIT 20-40 years study)
In the Stay-FIT pilot study, it was determined that the physical activity level of adolescents with CP (mean age 13.5 years) was lower than that of their healthy peers. However, the vessel health was not statistically different.
This project includes 6 systematic reviews of different rehabilitation interventions for children and youth with brain injury. Topics to be covered are: Hyperbaric Oxygen Therapy, Casting and Splinting, Botox, Alternative Therapies, Feeding and Behaviour Therapy.
The purpose of this study is to evaluate the effectiveness of physical therapists, acting as Knowledge Brokers (KBs) within their own clinical facility to facilitate the clinical use of evidence-based measures of gross motor function for children with cerebral palsy.
The purpose of the Move & PLAY study was to gain a better understanding of the child, family, and service delivery factors that support the development of movement abilities and participation in self-care, recreation, and play of preschool children with cerebral palsy (CP).
The Canadian Occupational Performance Measure (COPM) is a measurement tool that assists therapists in using a family-centred approach to service delivery by indicating the family's priorities.
Neurodevelopmental therapy and casting: A comparison of intensive neurodevelopmental therapy plus casting
The purpose of this study was to evaluate the combined effect of intensive neurodevelopmental therapy (NDT) and casting in children 18 months to 4 years of age who have cerebral palsy.
There are 2 summaries in this series describing the results of the main goal of the Move & PLAY study: to determine which child, family, and service factors influence children’s motor, self-care, and play abilities.
This is a qualitative research study intended to increase the understanding of children with Developmental Coordination Disorder (DCD) by examining the observations and experiences of their parents.
Stay-FIT Pilot Study: Accelerometry is a good way to measure daily physical activity in adolescents with Cerebral Palsy.
The purpose of this study (a Stay-FIT pilot study) was to test the ability of a device known as an accelerometer to measure physical activity in adolescents with CP.
Assistance to Participate Scale (APS), Child's Challenging Behavior Scale (CCBS), Canadian Occupational Performance Measure (COPM), Daily Activities of Infants Scale (DAIS), Focus on the Outcomes of Communication Under Six (FOCUS), Health Promoting Activities Scale (HPAS), Spinal Alignment and Range of Motion Measure (SAROMM).
This study set out to determine whether information gathered from parents and speech/language pathologists when they were toddlers are predictive of outcomes.
Evaluation of an information KIT for parents of children with special needs: Use, utility and impact
The focus of this two-year prospective evaluation (N=500) is to determine the perceptions of impact and use of the Parent Information KIT (KIT: Keeping it Together™) in pediatric rehabilitation settings.
This purpose of this study was to systematically document and evaluate existing measures of quality of life for children in order to help guide service providers and others in determining which measures offer the best utility to centres and agencies that provide rehabilitation services to children with disabilities.
Transition to Adulthood Services and Supports for Youth with Disabilities in Ontario: Best Practice Guidelines
There are currently no best practice guidelines in Canada for service planning and delivery that address the transition to adulthood for youth with disabilities. This "In Brief" highlights the recommendations from a research study which used an evidence-based approach to develop such guidelines for services and supports in Ontario.
What helps adolescents with cerebral palsy to be physically active? Developing a program to support youth based on focus groups.
In this communication we want to share our study protocol as part of a program to support physical activity for youth with cerebral palsy (CP) using a focus group methodology.
How Does Clinical Research Work? A Two-part Primer. Part 1: How to Ask a Research Question and Design a Study
Clinical and health services research in childhood disability are essential if we are to move the field forward and have confidence that what we believe we ‘know’ is in fact based on credible studies.
The purpose of this Keeping Current is to review the concern that, rather than being integrated, these two streams ("development" and "disability") of thought have traditionally run more or less in parallel.
CP-NET is proud to present "Communication Technology for Children with Cerebral Palsy", a webinar highlighting new research and technologies that aim to assess and support a child's ability to communicate.
D.O.O.R. 2 Adulthood: A Participatory-Action Research Approach to the Evaluation of an Online Transition Resource for Youth with Disabilities in Ontario
The long-term outcome of "D.O.O.R. 2 Adulthood" is to improve the process of transition to adulthood and to adult programs and services for youth with disabilities and their families in Ontario.